The National Haemoglobinopathy Register
A database of patients with red cell disorders
A database of patients with red cell disorders
Specialised Services Quality Dashboards (SSQD) are designed to provide assurance on the quality of care by collecting information about outcomes from healthcare providers.
NCEPOD undertook a review of current haemoglobinopathy mortality, to obtain broad baseline data and make recommendations to alter practice.
The service specification covers Haemoglobinopathy Coordinating Centres (HCC) to support the provision of specialist and non-specialist haemoglobinopathy services.
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