The National Haemoglobinopathy Register
A database of patients with red cell disorders
Further Information
NHS England SSQD
Specialised Services Quality Dashboards (SSQD) are designed to provide assurance on the quality of care by collecting information about outcomes from healthcare providers.
NCEPOD Report
NCEPOD undertook a review of current haemoglobinopathy mortality, to obtain broad baseline data and make recommendations to alter practice.
Haemoglobinopathy Services
The service specification covers Haemoglobinopathy Coordinating Centres (HCC) to support the provision of specialist and non-specialist haemoglobinopathy services.
Useful Links
Help and Support
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