Welcome To The NHR

The National Haemoglobinopathy Registry (NHR) is a database of patients with red cell disorders (mainly Sickle Cell Disease and Thalassaemia Major) living in the UK. This new database collects data,which is required by the Department of Health from Haemoglobinopathy centres. The central aim of the registry is to improve patient care.

National Haemoglobinopathy Registry Annual Report 

 Click the image above to view the National Haemoglobinopathy Registry Annual Report for 2018/19

Log In To The Secure NHR System.

Click the image above to log in (NHS N3 network access required)


Please see below for a list of summarised reports from the NHR. These reports are updated periodically, the last update was on the 27th July 2020

Click the links below to open the NHR reports:
Diagnosis by Gender 44KB
Number of Patients by Centre 50 KB
Number of Patients by Diagnosis 44 KB
NHR Patients Numbers Map 79 KB


See below for information about the NHR

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